Receiving a diagnosis of dementia can be an enormous shock, not only to the person with the diagnosis but also for their close relatives and friends. But it is important to remember that people can live well with dementia, and with the right support can stay living in their own home, and participating in community life.
Family and friends play a vital role in supporting and caring for those diagnosed with dementia. While this can be enormously rewarding it can also be quite daunting. The Carers Road Map aims to guide carers through their caring experience and provide practical advice and information to help family and friends who are supporting someone with dementia. Some of the information in the guide may be useful to you early on, when the person you care for is first diagnosed with dementia, and some at a later stage. You may also find it useful to dip into at different times.
The Carers Road Map has been developed from research commissioned by Carers Trust – A Road Less Rocky – Supporting Carers of People with Dementia. The research found that although there is no typical caring journey there are ten points in the caring journey where, if carers had more information and support the experience of caring for someone with dementia would have been made a little easier. We have used this research to provide that information and support in the form of this new Carers Road Map.
Although the terminology and legislation referred to in this guide applies to England the general guidance is applicable across the whole of the UK.
Next update due: June 2017