We are inviting any person who cares for someone with dementia to complete our survey — part of a new research project to help us understand this group’s needs and improve future services for them.

The survey coincides with a dementia roundtable event hosted today (7th March) by Carers Trust and Alzheimer’s Society and attended by Carers Trust President HRH The Princess Royal.

A strong message from the event was that despite ever-increasing demands, carers for people with dementia feel strongly that their needs are not being recognised.

Unsupported and uninformed

Our Chief Executive, Thea Stein said: “Carers support people with dementia to stay independent for as long as possible, and when the dementia advances, they provide support which delays the costs of residential care.

“However many carers say they feel unsupported and uninformed on the condition of the person they care for. We are optimistic that events like the roundtable can provide the impetus to allow these vital carers to feel less isolated.”

About the research

The research project has been commissioned by Carers Trust, funded by specialist charity insurer Ecclesiastical and carried out by the Social Policy Research Unit (University of York) and Firefly Research & Evaluation.

The UK-wide survey of carers of people with dementia is one part of the research project, which also includes interviews and focus groups.

We are keen to reach as many people as possible. If you care for someone with dementia or you used to (perhaps because the cared for person has passed away or needed residential care), please complete our survey. 

As well as being available online, a paper copy of the survey can be downloaded here

To receive a copy in the post, call Martin or Liz at Firefly Research on 01653 691351.