Date Revised:

There is a lot of advice, information and support available if you care for someone with dementia

If you look after someone with dementia you need to make sure you take care of your own health and wellbeing.

Get in touch with your local carer service. They may offer support specifically for carers who look after someone with dementia. They may also help you meet other carers in a similar position.

Other organisations that can help

Carers' Stories is a resource from Cruse Bereavement Care. Developed by carers, it gives advice to carers about what can help when caring for someone with dementia. 

Dementia UK provides a helpline as well as local Admiral Nurse Support. 

Dementia Carers Count offers low-cost three-day residential and one-day courses for carers caring for someone with dementia in practical advice and guidance and developing resilience.

Alzheimer’s Society has a lot of information for carers as well as an advice line and local support services.  This includes Singing for the Brain Groups which uses singing to bring people together in a friendly and simulating way. 

Age UK supports older people and has local services. 

There may be other groups for carers, and people with dementia, so ask your local carer service what is available near you. 

Make sure:

  • You have a carer’s assessment. It is a chance to discuss your needs with your local council.
  • Your GP knows you are a carer as they may be able to offer you support.
  • The person you care for has had an assessment of the their needs from your local council.

Carers Road Map: A guide for carers of people with dementia

Our Carers Road Map online guide can help if you care for someone with dementia. It includes lots of information that you might find helpful:

  1. When dementia is diagnosed
  2. When the carer takes on an active role
  3. Legal and financial planning
  4. When the person with dementia needs more support 
  5. Different types of care options
  6. When the carer needs emotional support and/or a break from caring
  7. When the person with dementia loses their mobility
  8. When the person with dementia has other health issues
  9. When the carer has to manage changing behaviour
  10. When the carer’s own circumstances change
  11. When the person with dementia becomes incontinent
  12. Considering decisions about residential care
  13. End of life care

Next update due: November 2021