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'm Glad Someone Else Experienced What I Have To........

By debzsanderson debzsanderson
Sat 30 Aug 2008 17:49

It was my pre-arranged morning out and Marks mum took over from me. I had a lovely relaxing time in the sunshine and totally chilled out. But then I got home...................I walked in the door to find Marks mum AND Mark in tears. Apparently Mark had problems going to the loo and then his mum didn't help "properly" which started Marks temper with mega swearing (I regularly experience this). I often think that everyone else thinks we have an easy life dealing with MS and day to day living but we never have a straight forward day that's stress free-I wish!! I know it sounds cruel but I was so glad she experienced the "other side" of our day.Needless to say I feel so guilty (I'm not sure why) about leaving Mark but if I don't get out I would go insane. Mark always feels guilty afterwards and so then we have the quiet, not talking phase. I get used the to the swearing and tempers - I often burst into tears but thats how I cope.I never swear and of course I can't go for a walk to chill out because I can't leave Mark. Does anyone have any tried and tested coping measures I can try?? Maybe I should start drinking or smoking to calm ymself down-oh I forgot we can't afford it!! Anyway - normality has resumed and I daresay I will be sending Flowers to his mum later to apologise...............

Debz xx

Replies

By loopy
Re: 'm Glad Someone Else Experienced What I Have To........
Sat 30 Aug 2008 20:35

when my daughter goes off on one of her legendary tantrums, i make sure that there is nothing there to hurt her eg, sharp objects. I then try to calm her down myself by talking quietly to her and calming her down. sometimes this works but when it doesnt, eventually i have to walk into the garden to chill myself out (used to be with a ciggie but as you say its expensive so i gave it up.... Yes emoticon ) She usually calms down quickly but sometimes it can go on for a good half hour maybe more. Sad emoticon

By katew
Re: 'm Glad Someone Else Experienced What I Have To........
Sun 31 Aug 2008 07:46

hi debz

we know more than ever how hard it is to deal with daily life with MS. Yes emoticon I seem to have far more temper tantrums Angry emoticon from ian than luckily you have from mark. I seem unable to do anything right for ian no matter what i do.. i have found that when he gets in a temper i have to walk away and leave him to calm down. i used to have ciggy but gave up cus i couldnt afford to smoke Angry emoticon

all i can say really is i know what your going thru.
((((((((((((((hugs))))))))))))

ive just been authorised for 6 hrs carer respite but ian says what the f*** do i need that for - hes the one who ill not me !!!!!.

best wishes
kate xxx

By katew
Re: 'm Glad Someone Else Experienced What I Have To........
Sun 31 Aug 2008 07:47

PS just to give you a giggle......
just glanced thru patio windo and found my 2 dogs locked together in passionate embrace.... Oh My! emoticon

my god thats all i need puppies in 9 weeks Surrender emoticon Surrender emoticon Surrender emoticon

By Tricia
Re: 'm Glad Someone Else Experienced What I Have To........
Sun 31 Aug 2008 08:10

lol Kate that reminded me of the time I saw two dogs doing the same thing when out in the car one day with my Mam. She commented that they were only doing what was natural for them........ I don't think she would of agreed had she walked in my ex husband (who I was married to at the time) and found us in the same position!

By Tricia
Re: 'm Glad Someone Else Experienced What I Have To........
Sun 31 Aug 2008 08:12

oh Deb don't you dare send his mother flowers. She should be the one sending you flowers for putting up with the way her son is these days. You deserve a medal as big as the moon to put up with what your going through and she only went through it for a few minutes and could not cope..................

By sky
Re: 'm Glad Someone Else Experienced What I Have To........
Sun 31 Aug 2008 09:58

Hi debz
My coping strategy at the moment is to have a small watering can and some sweet peas by the back door so I can escape for just a few minutes watering a tub or plant then on the way back in get a good nose full of flower scent. Seems to work ok for me .
Take care
xx

By ginger31 ginger31
Re: 'm Glad Someone Else Experienced What I Have To........
Sun 31 Aug 2008 19:50

Have just been reading your posts, hope things have calmed down a bit for you Debz Sad emoticon Do you find one of the things you miss being a carer is the lack of spontaneity? Everything you do has to be planned with military precision, no more just nipping here or there - if I do this at this time what will happen if he wakes up? Will it be lunch time or medication time? Will he need the tv on, will he need it turning over? Is the hassle of what might happen worth the effort of nipping out after all lol?
I wish I had appreciated my freedom more when I had it.......

Take care

Louise x

By Funkyfur Funkyfur
Re: 'm Glad Someone Else Experienced What I Have To........
Mon 1 Sep 2008 00:50

Have you thought about yoga or meditation? Meditation need only take up about 10 mins at a time once you're in the swing of it...

By debzsanderson debzsanderson
Re: 'm Glad Someone Else Experienced What I Have To........
Mon 1 Sep 2008 09:25

I totally agree Louise!!

I am totally housebound with Mark except the couple of hours a week I go out - that's why it's so important for me to get out and have some "me time".Mark has MS and so his whole body is effected - I can't even go and see a neighbour when he's asleep incase he needs to get to the loo urgently.
I have got a cleaner allocated for an hour a week starting today Yes emoticon which will mean I can finally get all the high up stuff down (I'm only 5 foot and have balance problems so I can't even use steps). As far as doing meditation I do have a cd that I do for relaxation (inbetween being called to do things). Louise-I often say to myself that I also wish I had appreciated my freedom befor Mark got worse. Anyway-I'd better go empty the washing machine and get on with breakfast-thanks for everyone being so caring.

Debz xx

By debzsanderson debzsanderson
Re: 'm Glad Someone Else Experienced What I Have To........
Mon 1 Sep 2008 15:43

Had the cleaner in this morning and I was sceptical what she could do in an hour but wow was I wrong!! She washed all my lampshades, took off all my ornaments and washed shelves (didn't ask her to!!), all the kitchen cupboard tops, swept and washed bathroom and kitchen floor, dusted shelves and bedside tables etc. It is subsidised if you're on Income Support so only cost £5.20. Looking forward to next week-she told me to leave her stuff to do!! I actually sat with Mark and we chatted about whats bene happening lately and hopefully cleared the air a bit between us.

Debz xx

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