Carers of older children with Learning Disabilities

Replies

By kerry.

Re: Carers of older children with Learning Disabilities
Wed 6 Aug 2008 21:09

Good luck with it Katiea,
I'm struggling to find much on parent carers myself as most of what Ive looked at points towards caring for adults (spousal or parents)
Im finding it hard to get motivated to be honest although I know I need to get going on it!

Sorry I cant help you but Im sure there will be some here who can.
Best wishes.

By mel

Re: Carers of older children with Learning Disabilities
Sat 9 Aug 2008 21:10

sorry katiea my sons 11, but would that be any help to you kerry? he has a specific learning disability (which they dont know what it is) mild autism and partial aspergers.

By kerry.

Re: Carers of older children with Learning Disabilities
Sat 9 Aug 2008 23:01

Thanks Mel , but what Im focussing on is the actual carer of the child/ren, and for obvious reasons (financial, time etc) will be focusing on my little part of the world for the actual interviews, narratives etc, but its the secondary research I'm finding hard to get, e g stuff thats already been done on this area.
most of the stuff ive looked at focuses on spousal or older people or people with cancer and such like.
but thanks anyway, much appreciated.

By fenlander

Re: Carers of older children with Learning Disabilities
Sun 10 Aug 2008 21:54

Had a look - what a long questionnaire. Like most carers I just haven't got the time- sorry!
However most of the answers you could predetermine - perhaps you could edit it down to the more variable ones?

By katiea52

Re: Carers of older children with Learning Disabilities
Mon 11 Aug 2008 10:39

Hi,

I know time is a huge problem for most carers so thanks very much for having a look! Unfortunately I cant take any variables out because they are taken from pre-existing scales that have been found to be highly valid and reliable and so I would weaken the findings by doing this.

Again, Thankyou to everybody who's taken their time to do it or have a look I really appreciate it. it should take between 10-15 minutes and I know that this time is valuable to yourselves.

By gemini mum

Re: Carers of older children with Learning Disabilities
Mon 8 Sep 2008 09:32

hi there katiea.

I 'm new to this board and just came across your request. I don't know if you have enough parents involved yet but if not i would be willing to share my experiences as a parent /carer for my son who is 21.

A dificult child, my son was diagnosed with ADHD at the age of 10. Although seen as a childhood condition ADHD does not stop or relent but can be helped if there is adequate interventions early enough in life. Unfortunatly, help is often not adequate as in the case of my son and recently, he has suffered a complete nervous breakdown finding life just to dificult to cope with. He has now been Re - diagnosed with adult ADHD which include many co - morbid conditions such as anxiety disorder, social phobias, depression, extream mood swings and behavioural difficulties to name a few. There has even been suggestion of some form of mild autism. Though under the mental health care team, help is still very inadequate and painfully slow to get. There are no facillities in this part of the country for the treatment Adult ADHD and even though there is a wonderful place in york that could help him, the LHA are reluctant to fund his treatment.

Anyhow briefly that is the story. and if you would like to get in touch I would happily tell you the impact this has had on all our lives.

Gem