Organisations engaging more carers
- By michaelll
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Sat 9 Aug 2008 11:23
Hello
I am undertaking some research to ascertain the extent to which carers are or are not engaged by services, particularly voluntary and community organistions.
I am interested in hearing from anyone who has felt 'left out' from services For example, you may feel that because of location or particular ethnic grouping that you have difficulties with access to services and/or perhaps those services may be inappropriate to your needs.
As I am not a carer myself and have no personal experience of caring I would value the perspectives of carers themselves around the issue of diversity and inclusivity.
I am doing this as part of a university course and in conjunction with a county organisation that will be using the outcome of research in order to improve their services.
Thank you for reading this, and I hope you don't mind me using your forum in order to develop a picture of some problems out there.
Best wishes
Michael
Replies
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By glynne
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Re: Organisations engaging more carers
Sun 10 Aug 2008 16:57Good luck!
Michael, it is good to hear that a council is trying to improve care when many are trying to be rid of it; closing care homes. To me you are welcome here and I hope you find what you are looking for. There will be many examples of what is wrong, shortcomings across the board; people let down by care causing more stress to them.
Some may not post on the boards; but in chat we hear lots of tales that don’t make it onto the boards. It’s one thing chatting; another posting in a more formal way.
Like the lady who when asked how she was replied “tired”; her charge was some distance away in ‘sheltered accommodation’ the lady had been called out by the monitor of the system; as the ‘warning alarm’ had gone off and she had to run over there; not a warden; not the police; late at night to look to her father as someone was trying to break into his window. That being considered adequate care by her council.
I myself asked in a sponsored chat asked a member of the All Party Committee for Care why care money from the government was not ‘ringfenced’. “We like to leave that at the local level; let them decide!” Allocating money for ‘care’ that is ringfenced is still leaving it at the local level as to distribution; without the fence it could be used on anything at all on the whim of the council.
This is not at all what you are after; I am having a general moan sorry; but I think it shows the lack of drive and thought that is given to care!
- By fenlander
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Re: Organisations engaging more carers
Sun 10 Aug 2008 21:47What services? Might be more useful to ask which sector of society is getting the support/help they need? If any?
- By morello
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Re: Organisations engaging more carers
Tue 12 Aug 2008 10:55Services, thats a joke, there are certain people for whom services are not avaiable or very basic, my caree is autistic. No services there so get Direct Payments. But we cannot help you find anybody to do them. I am isolated know nobody in my area and have no chance of finding anybody. Therefor we get left alone 24/7, no social worker, no emergency number if there is a severe problem, and of course we dont get any pay. This is the reason one can suppose why we are left, in case we upset the balance. There are the paid people who do sweet FA and the unpaid carers who do everything, plus have the stress, tiredness, anxiety of being left unhelped,uncared about, but saving the government millions of pounds.
Money is allocated to where the social services dept want and it is irrelevant whether large areas are being ignored.
You cannot lump every person requiring support as a "learning disability" because that is just a name to cover all. It is ludicrous. Different disabilities need different typed of care, and the sooner these morons wake up and realise this the better for everone. The people who distribute the cash should be more able to distinguish the different needs etc. But if Social services cant the who can. The local councils dont give a toss so it is a never ending circle of money being wasted when there are care needs that need addressing but get cut off from the mainstream because they are different and cause too much hassle. It means actually doing some work ,instead of passing their day drinking coffee and talking twaddle . Those in need are still in need and will continue to be so unless changes are made by the government and the power taken from these crap councils.
Mo
- By michaelll
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Re: Organisations engaging more carers
Tue 12 Aug 2008 21:27Hello Glynne, Fenlander and Mo
Thank you fo your forthright and honest comments, it is these I need if I am to gain an insight into some of the issues that carers experience. If I may, perhaps I could come back to you later with specific questions. Oh, and thank you for your welcome.
I used to work for local government, but left to go and work for a charity hoping that my skills there could be used in another, and hopefully, more effective context.
I have never worked around the caring services but mostly within substance misuse, offending, and regeneration. I decided to undertake the research on carers as I did not want to do something connected with my work so I could have the freedom to explore.
Thanks again for taking the time to reply, it is much appreciated and welcome further comments so I can build up common themes.
Best wishes
Michael
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By glynne
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Re: Organisations engaging more carers
Wed 13 Aug 2008 18:43And thank you for your reply. Ask anything of me that you wish but bear in mind that our circumstances are good compared to many in here.
In fact very soon after joining the site I began to feel a cheat for coming here after reading and hearing the things some have to endure.
- By michaelll
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Re: Organisations engaging more carers
Tue 9 Sep 2008 22:46I am sorry that I have not been in touch. I went away for a few days and my laptop was stolen meaning all my important information was lost including passwords to this site etc.
I would like to thank you for replying to my request
best wishes
Mick
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