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Gotta love the NHS - not!

By BlueBelle
Mon 4 Aug 2008 18:53

Well that hospital visit was a waste of time. Cursing emoticon

We were told today that mum was originally diagnosed with PSP while in hospital last November – funny that no-one bothered to mention that fact to mum, her GP, the respite home she went to from the hospital – or me, her primary carer. And if they told anyone on the ward then they neglected to pass the information on to anyone as well. Cursing emoticon

Today we had a follow-up appointment to an appointment in January – when we had been given a ‘probable’ PSP diagnosis. We were referred to the same neurologist as in January and told there would be an eight week wait for an appointment - but considering we’ve already been waiting over six months I’m not holding my breath.

Very upsetting when mum wanted me to ask the doctor how long it would be till her body started working again – difficult for me to tell her never. Crying emoticon
P.S. Happy Birthday Mummy Bluebelle

Replies

By fenlander
Re: Gotta love the NHS - not!
Mon 4 Aug 2008 23:52

If it was me I would ring the neurologist's secretary and ask her to check that they have received the referral [wouldn't be the first time they have gone astray] and explain that your MUM is very anxious and constantly asking you how long it will be and can she let you know a timescale! Can't hurt and you will at least have more idea how long it will be! Smile emoticon

By BlueBelle
Re: Gotta love the NHS - not!
Tue 5 Aug 2008 07:54

Ahhhh, there lies the problem.

Phoned dozens of time but only ever got his secretary's voicemail. The only time I got a call back - after about three months of trying - was to tell me that she was new, they hadn't had a referral but she would look into it but it would be four weeks before we got an appointment.

When this latest appointment arrived I phoned to check it was with the right person - as it only said the consultant's team - and was assured it was.

Head, brick wall, lots of bruises Cursing emoticon