Hya, I'm new to this and just looking for a chat

Replies

By lynba2

Re: Hya, I'm new to this and just looking for a chat
Fri 5 Feb 2010 09:18

hi lisa welcome you wont be lonely on here what is wrong with your son it depends on what is wrong with him you can usually find groups that you can go and chat to other mums with the same problems my son has cp or if you dont know what that is its cerebral palsy hes 20 now so fairly independant but there are a lot of people on here with different storys so just ask xxxx

By Lisa J

Re: Hya, I'm new to this and just looking for a chat
Fri 5 Feb 2010 09:29

Hya, my son has rubinstein Taybi syndrome. He's 4 now but doesn't walk or talk yet but there is hope. There are no families local that have a child with this condition. I think there is only roughly 200 cases in the UK. I have been to a family weekend with other families with RTS. I think my main problem now is that I lack the confidence to just get out there!! lol

By mikehudds

Re: Hya, I'm new to this and just looking for a chat
Fri 5 Feb 2010 13:38

Hi Lisa,
I care for my elderly parents, one who is registered blind and the other suffers from increasing dementia.
As you are, I am a full-time carer. I do understand the difficulty in getting out and meeting people, as I can't leave my mother especially.
Have you had a chat to your GP about your concerns, as mine was a big help to me and got me a therapist who is trying to build my confidence to get out there.
His advice to me is to try and pursue a hobby at an evening class, which is a great way to meet different people.
Take care
Mike

By suejane

Re: Hya, I'm new to this and just looking for a chat
Fri 5 Feb 2010 13:50

Hi Lisa and welcome. I care for sports mad son aged 18 with anxiety disoder moderate leaning difficulties and deafness. We take him to at least 3 different sports groups and meet people there. I think the evening or day class is a really good idea.
Best of luck it isnt easy but everyone on here is very friendly and will offer ideas and support. x

By lynba2

Re: Hya, I'm new to this and just looking for a chat
Fri 5 Feb 2010 14:21

hi lisa again lol if you want to chat we have a chat room on here you will meet some really nice people on here we will build up your confidence for you its open usually about 2 in the afternoon or otherwise about 10ish at night look forward to seeing you in there xxxx

By hal

Re: Hya, I'm new to this and just looking for a chat
Fri 5 Feb 2010 14:24

Hi Lisa

Welcome to you. I look after my wife who amongst other things suffers with diabetes, other areas of concern are heart problems, angina, COPD, anaemia, arthritis. A lot on my plate i know but its only the diabetes causing me concern at this time, other problems are under control.

If you want a chat now then please pop into the chatroom, going over there at about 2.30pm and am in there generally every weekday for an hour or so and we are in from 10pm any evenings.

Look forward to chatting with you.

Hal

By lynba2

Re: Hya, I'm new to this and just looking for a chat
Fri 5 Feb 2010 14:40

its me again lol just read up on rubenstien wow thats a mouthful lol i must admit i have never heard of it before seems lots of problems having it but it seems they do get on ok and are happy children so good luck to you and hope to chat soon xxxx

By kerry.

Re: Hya, I'm new to this and just looking for a chat
Fri 5 Feb 2010 18:34

Hi Lisa
Does your son go to sen school or nursery yet?
I imagine he will soon if he's 4 now. Anyway what I was thinking is that if/when he does you could set up a coffee morning there for say one morning a month for other parents to come to. The school could allocate a room for this purpose.
The trouble with SEN schools is that often they get taken by mini bus or cab so you don't get the 'meeting other mums at the school gates' options.
I and a couple of other parents did this at my boys old school with the help of the head teacher and it was a great success. Sometimes we even got speakers in to teach Makaton etc (you could give a talk on your sons condition even!)
The parents really appreciated it as they were all often in he same boat (Isolated and spread out over miles)
Now I have moved 300 miles from there and I'm still in touch with at least 3 of the other mums (mostly via text and FB)

BTW I have 2 boys with SLD fragile X syndrome/Autism and stuff. Plus 3 daughters, one grandson and another due in April.
Best of luck. Things will get easier and you will eventually begin to meet people- it just takes courage and I'm sure that you have that in abundance- I think all us carers do, it's what keeps us going. That and a bloody good sense of humour!

By carolm

Re: Hya, I'm new to this and just looking for a chat
Mon 8 Feb 2010 11:05

This probably isn't practical, but we got a dog, who I take out every day. Sometimes my husband (who is the one I care for) comes and sits on a park bench while I walk about, and sometimes he stays in the car.
So he has met more people from sitting in the park, and I have chatted to loads which has been brilliant! I'm a sociable soul and it had been driving me crazy being at home most of the time with very little contact with anyone except my husband.

By Anna Christina

Re: Hya, I'm new to this and just looking for a chat
Mon 8 Feb 2010 13:21

Hi Lisa
Welcome to the site; I've just joined too and it's already helped me loads. The loneliness involved in being a carer is one of hardest things, I have found. Only other carers understand. Family don't because they are busy getting on with their own lives and friends are usually working and their spare time is precious. I'm very aware that I don't want to burden anyone with my problems, so this site is where we can all share these problems and it's great to be able to do that. I care for my Mum of 88 who is frail, arthritic, deaf, with mild dementia and she is very dependent on me; we are very close and she has been a wonderful Mum to me. Getting respite care is very important - I find this a problem myself.
You sound a very friendly girl and I'm sure in time you'll make friends in your new neighbourhood - good luck
Love and hugs
Anna Christinaxx