I feel so alone

Replies

By kerry.

Re: I feel so alone
Fri 3 Oct 2008 22:04

Hi Bubbles,
Awww, my heart goes out to you. What a dilema you're in.
If I were you I would badger SS every day because in the end they'll get so sick of hearing you or seeing you that they will be forced to act.
Go to the papers if you have to- I have before and it worked a treat!!! Made them sit up and listen and realise i was a force to be reckoned with.
dont let them rail road you with empty promises and excuses- they have a legal DUTY OF CARE as part of their qualification.
Go to your MP too, its amazing what they can do if pushed.
have you had a carers assessment through social services- this is a legal requirement and you are legally entitled as your daughters carer.
In the assessment you say what YOU need- whether it is respite, support within the home or with your daughter etc.
(Carers- recognition and services- Act of 1995) Look it up on google.

I am sure there must be services desighned for your daughter regarding her sexuality.
others on here may be better informed about that.
but you could try googling mental health services for your area.

sorry i cant help much but we are all carers on here, so we all understand, even tho our situations are so diverse.
For example, i care for two of my kids who are severely mentally disabled. some care for their parent, others for their spouse and many for their children.

You sound off as much as you like- that's what this site is for!

By Bubbles

Re: I feel so alone
Fri 3 Oct 2008 23:18

Hi Kerry thank you so much for replying to me. Yes we did haved an assessment where I told them how I feel alone and find it hard to cope with at times. They made a lot of noises of the right kind and we never heard from them again. I was told by my daughters psychiatrist that we were classed as low priority. Trouble is we have never had a social worker and have always muddled through on our own. I am nearly 54 and I do get very tired at times. My health is not great and my daughter can be very demanding. It must be very difficult for you with two children with all their problems and I really appreciate your time in replying to me. How do you cope Kerry? Bubbles.

By Tricia

Re: I feel so alone
Sat 4 Oct 2008 06:54

Hello Bubbles

This is a subject which I dread one day I may have to face when it comes to my son's needs. He has autism and learning disabilities. He is now 17 years old and has often asked questions like how old can you be when you can fall in love. I have told him that is something no one really knows it depends when you meet someone. I have asked him if he has and he said no it was just that he wanted to know how old. So his thoughts must be approaching this subject in the future. As a single parent with no father figure in his life I am the one who will need to find out who to approach.

I am aware of men with learning disabilities groups in my area so will be able to approach them for support when the time arrives. There is also a woman's group which discuss personal relationship issues as well as woman's health issues. These are all people with learning disabilities and are approached in a very sensitive manner which takes into account the respects of those involved.

These groups are held through the support from The Learning Disabilities Federation based in North Tyneside.

There is also a drama group whicvh tour all over the place who have been around since 1986 and they cover personal relationship issues such as the issues you have addressed above.

I am unable to put the web link on here due to the problems the web page is facing so I am putting it on split up you will have to retype the web link onto a webpage without spaces

w w w. thelawnmowers.co.uk / company/staff.php

Remember to delete the spaces on the weblink for it to work

I hope they are able to help and support you and your daughter in helping to resolve some of the issues which you are facing

take care

tricia

By Bubbles

Re: I feel so alone
Sat 4 Oct 2008 16:24

Hi Tricia, Thats just the sort of thing I was looking for. I live in Essex and have not come across anything like that. I think you are dead right in dreading this time in their lives as it opens a new can of worms!!! I know I shouldnt but sometimes I wish she was tiny again when a kiss and some sweeties would take her pain and worries away. Looking b ack though I can remember thinking it would be better when she got older so it seems whatever their ages the problems are always there but in different forms. Anyway it is so nice to have people to share worries with. This is the 1st time since my daughter was at school that Ive been able to discuss any of her problems as the rest of my family just do not even get near to understand the problems facing us. My sisters famous words to me are quote If she was my daughter I wouldnt have any of her nonesance(sorry about the spelling) unquote. They havent got the foggiest idea. Anyway I hope we can talk again. Take care for now.Bubbles.