Turned down for DLA,crying for help and advice PLEASE

Replies

By marie66

Re: Turned down for DLA,crying for help and advice PLEASE
Tue 9 Sep 2008 14:01

Hi, I was turned down recently too.
The girl on the phone was very nice and she advised me to have them look at it again!
I also added how things had deteriorated.

They've not got back yet so I suppose they're having a look at something anyway.
CAB & Welfare rights are also a good place for advice on this!
marie x

By sofie

Re: Turned down for DLA,crying for help and advice PLEASE
Tue 9 Sep 2008 14:19

Hello Pebbles, So sorry to hear you are so down at the moment and so obviously exhausted. The government seems to be trying to get everyone off every benefit they can at the moment. Yes it probably is a first step to let them look at the decision again as a starting point. You have to "play the game" with them as it were. Faceless people who do not really care what you are going through. They can go home on a night and forget what is happening to you, although I am not saying they are all bad. I know it is draining but hope you find the strength to fight on. My love and best wishes to you. I am sure you will get a lot of support on this website. Sofie xxx

By morello

Re: Turned down for DLA,crying for help and advice PLEASE
Tue 9 Sep 2008 16:52

Welfare rights are good with this, thats if you can get through to them as they are busy. Dont despair, these people are always doing this. Ask for an appeal form and if you have a Social Worker and they are any good ask for help filling it out. They are 99 % rubbish but there are a few good ones. Failing that take the form to your GP most of them I have found are good and understanding, and will often write a covering letter setting out the problems. Believe it or not I had to do that when I had a blue badge turned down after 10 years because I moved area. My GP was disgusted, I gave her their letter and the forms and Hey Presto got a blue badge within a couple of days. Please dont despair, I think these faceless people are put on a phone to turn down and take back any benefit they want by the government, to save money.I am sure you will get it back, its just we not only have the stress and tiredness and no pay for caring, but we have to shout and fight and be downright nasty at times to get what we are due.
Mo....GOOD LUCK< CHIN UP

By diddy diane

Re: Turned down for DLA,crying for help and advice PLEASE
Tue 9 Sep 2008 21:30

Don't give in you're next step is to ask for a review if that fails go to appeal. My son has had dla since the age of 6 and when he turned 16 I had to go to appeal to win his money back the next stubbling block is when he is 18 I hope this will be more straight forward. But I have heard this haqppens to a lot of children when they turn 16 so don't give in. I am told we are tested when kids turn 16. hope this helps

Diane xx

By mand65

Re: Turned down for DLA,crying for help and advice PLEASE
Tue 9 Sep 2008 21:58

Hi Pebbles, try welfare rights, they were brill with sorting DLA out for my daughter. She has learning difficulties and presenting problems with behavour any bells ringing ive had a referal made for psychology imput~looking into asd and aspergers, she also has an intollerance to food colourings, preservitives etc and is constantly on the go and yatter, yatter, yatter for england !!!. I know how you feel even down to my father having a terminal illness and sadly passed away 4 months ago, its hard going some days, even my middle daughter tried to leave home with all the stress, everything happening at once. Well we got through it, and now sorting direct payments out so i can still work. Give local welfare rights a call and get the ball rolling and tell warts and all.We had two one hour appointments and looked into any other benefits i could claim (none) I make lists out and only take on one thing at a time as my brain is "fuddled" somedays, its great when you've forgot where you put your list!!! Take care and stop juggling ......M

By EL

Re: Turned down for DLA,crying for help and advice PLEASE
Tue 9 Sep 2008 22:32

Of course they are gonna turn you down! they don't want to pay up unless they really have too I put in a claim for my son Adam (13) and was turned down, the first form was filled in by someone at the CAB too, i just gathered more evidence and persued the claim which was granted and back dated, if you think your son should be on DLA then dont give up

By pebbles

Re: Turned down for DLA,crying for help and advice PLEASE
Tue 9 Sep 2008 22:56

Thank you all for all your replies,I wont give up and iv taken on board what you have said all of you,I will have it reviewed again and in the process today of writing a very long letter(got to type up a proper copy)in it Im putting details of the lady whos assesing him(which I already did on previous form)but they couldnt be bothered to ask her they based their opinion purely on what i had told them not what his doctor who specialises in this does,I will ask them to contact her this is very important.....I feel so alone at times....feel like noone understands....my husbands good we are like best friends as well as husband and wife..dont know what I would do without him... its almost an hereditory thing on the male side....even though he to has something similar you wouldnt realy know it,he does hold down a good job and always has done but struggles socialy and does obsess but not to the point that my son does, he has it very bad,even tonight hes going on and on about this big bang theory thats on the telly telling my 7 yr old we are all going to die tomorrow,shes gone to bed realy upset..... earlier on I caught him jumping on my other daughters bed(hes 18 nearly),I just bought him a load of new clothes and because he doesnt like the colour of them I now have to take them all back(he wears the same thing everyday)he talks excessively.....I would love to have a friend like all you above as you all understand what its like......I will look into welfare rights and he so deserves this money,hes not the same as others his age,he needs more care than other children his age,so yes Im going to fight for what I feel is what he deserves....thank you all.......

By coby6602

Re: Turned down for DLA,crying for help and advice PLEASE
Thu 11 Sep 2008 10:13

Good luck Pebbles!!! Your son is very lucky cus he's got one hell of a Mum looking out for him . You will find some lovely people on here (they really helped me when Mark got his Aspergers diagnosis). These people are the true experts and you will always get sound advice but more importantly friendship and understanding. Stay strong, you will win in the end. Big love to you all. xx

By HUBBARD168

Re: Turned down for DLA,crying for help and advice PLEASE
Sun 28 Sep 2008 16:05

Help with DLA forms, is very easy if you have a book called,
DIsability living allowance, a GUIDE and CHECKLIST. this book shows you how to fill the form in step by step. What to say, word to use etc. ITS THE BEST GUIDE FOR DLA CLAIMETS. You get from, Disability Alliance, Unversal House,88/94 Wentworth House. London E1 7SA.
PHONE 0171 427 8776 and they are line. IT WILL SAVE PEOPLE A LOT OF TIME

By Bagheera1

Re: Turned down for DLA,crying for help and advice PLEASE
Sun 28 Sep 2008 22:22

After about seven appeals, I was eventually gram=nted Higher Rate of DLA just over 12 months ago, got a Motorbility car and have recently renewed my 12 month tax disc ...........

..............YESTERDAY [ Saturday, of course, when ALL offices are CLOSED !!!] I got a VERY rude letter from Blackpool saying they had decided to withdraw my DLA award and DEMANDING that I make arrangements to return the CAR ANS THE TAX DISC!!!!!!!!!!

My health is worse, not better, and I'm on a waiting list for a SECOND Hip Replacement job. I was under the impression they can't DO this sort of thing, that my DLA award is a fact of life (unless I go to Lourdes and experience a miracle cure.............??)