***Restpite***

Replies

By lulu

Re: ***Restpite***
Thu 24 Jan 2008 10:19

I am delighted to read this Betty.
I hope this time will be beneficial to you get plenty of rest and do the things that you have had to put off.
You deserve it and dont forget to fix up a date for the next time.
love
Wendy

By loopy

Re: ***Restpite***
Thu 24 Jan 2008 10:29

i am glad you have got some respite. I get respite care for my 16 year old daughter and believe me betty, i need to recharge my batterys when she is in there!! so i hope you can recharge yours too.

By morello

Re: ***Restpite***
Thu 24 Jan 2008 10:29

Enjoy your rest, I have had 18months with none and am so tired and weary that I really feel I cant carry on anymore, to go to bed and relax and sleep without the constant listening and getting up, what bliss and such a simple wish for most people isnt it ?
Mo

By loopy

Re: ***Restpite***
Thu 24 Jan 2008 11:13

hi mo, i cant believe that you havent had any respite for 18 months! that really is disgusting. I dont know your circumstances and i dont wish to pry, but have you not got any family that can help you? I am having a battle here to get my daughter a social worker, they just dont seem to want to know. I have just phoned up my council tax office to see if we are eligable for a reduction and they have said "no" aswell!! It really does seem that this government want you to live on fresh air and dont want to give you help unless you shout long and loud for it and even then they are tight fisted! perhaps gorden brown needs to come and live with us for a week then he might have an insight into the "real world" of caring. That is, the sleepless nights, nights of broken sleep, battling for social workers and dealing with doctors that talk to you like dirt. Oh yeah and not to mention where we think our next meal is coming from (having to scrounge about in the bottom of the freezer to find something) and having to ration out things aswell!!

By loopy

Re: ***Restpite***
Thu 24 Jan 2008 11:15

perhaps gorden brown might like to come and clean up my daughter at 4am in the morning when she has been to the loo!!

By wearybetty1

Re: ***Restpite***
Thu 24 Jan 2008 14:03

Thank you for that ladys..
George thinks he is in hospital..
He fell last thursday hurt his back,and he has infection in the bladder,this is the second lot of penicillin since the 29th dec.so hes in the home not hospital to get better. shush dont tell him the or he will want out
before the 2 weeks are up......
He was hallucating, and off the legs, wetting his pants/trousers/pyjamies, when he was in the toilet.
so you are always changing
washing clothes to keep with him.
Than you again from Betty x x

 

By loopy

Re: ***Restpite***
Thu 24 Jan 2008 22:13

hi betty, hope you are enjoying your break. I know what you mean when you say you are always washing clothes! i do about 4 loads a day!!! i have just checked on my baby girl ( i say "baby" she is 16, but she is my big baby) and she is fast asleep, bless her. hope you can recharge your batteries. god bless.

By zebedee

Re: ***Restpite***
Fri 25 Jan 2008 01:31

Im so pleased for you. Hope you will make the most of it.
I have never had respite, 23 yrs and ongoing.
Everybody still has the right to choice thankfully.
In my situation it would not be at all suitable.
love and best wishes.

By morello

Re: ***Restpite***
Fri 25 Jan 2008 09:34

I think if Gordon Brown came here for one night and I left him alone they would be carrying him off in a white van in a straight jacket. Spent the last two nights cleaning up filthy toilet walls bodies and feel like I smell of the stuff. I have reached the point when I feel so ill I dont know if I can carry on, without dropping myself. As for social workers, dont wish for one because mine is rubbish and couldnt care less. No support or help and never seems to be anywhere but "in a meeting" if you try to ring. The only other suggestion is putting my caree into care. So much for keeping people in the community. But have you seen the way they are neglected in the "community".Who could do that to somebody they love. I long ago resigned myself that there was me an her and the rest of the world didnt exist. There is no help or support so I just get on with it and wait for the end and some peace.
Mo

By zebedee

Re: ***Restpite***
Sat 26 Jan 2008 01:19

Dear morello,
I understand what you say.
Thinking of you and sending you a lot of love.